On the occasion of the release of its annual report, The Pierre Fabre Foundation is publishing a series of interviews with the partners who support it in carrying out local actions.
The fight against sickle cell disease is gaining structure and momentum.
You’ve been working with the Fondation Pierre Fabre since 2015: in what ways has this collaboration evolved?
The Foundation has invested in several key areas: early screening, improving healthcare quality, raising public awareness and strengthening physician skills. In 2020, this partnership was formalised by the signing of a three-year framework agreement between the Fondation Pierre Fabre, the Burkina Faso
Ministry of Health and associations fighting sickle cell disease. We will be jointly implementing the DREPAFASO project in an effort to develop a national policy to fight sickle cell disease.
How will this specifically benefit sickle cell patients?
The project encompasses improving diagnostic processes through systematic screening of pregnant women and new-borns, broadening access to healthcare, training caregivers, generating greater involvement by civil society and establishing clear mapping of the incidence of sickle cell disease in the country. Taken together, all these actions will help improve patient care and quality of life.
Do you already see changes in the field with respect to recognition of the disease?
The Covid-19 pandemic disrupted our work in 2020, but the results of our actions are nevertheless positive thus far. With major advances: a better framework for dialogue and experience-sharing, improved networking for referring physicians, a process to improve consistency in medical practices and increased involvement on the part of the Burkinabe authorities.
There’s no doubt that the fight against sickle cell disease is gaining structure and momentum. And the Foundation is playing an essential role.