Albinism Awareness Toolbox
— Consult the available documents —
Would you like to learn more about albinism? Do you run awareness-raising sessions on this genetic condition?
This page is dedicated to providing information and awareness materials on albinism. You can consult and download resources tailored to your needs.
Why is there still a need for more information about albinism?
Albinism is a genetic condition that results in the absence of melanin in the skin, hair and/or eyes. Because of this condition, people with albinism are extremely sensitive to the sun’s rays and highly susceptible to developing skin cancers. To limit the risks of exposure, there are simple protective measures that need to be known.
The widespread lack of knowledge about albinism contributes to the dissemination of false information and the persistence of myths and beliefs that are at the root of discrimination and human rights violations against people with albinism. Given this situation, there is a need to raise awareness to disseminate scientifically verified information on albinism and promote a better understanding of this genetic condition.
THEMES
Women and children impacted by albinism
Animated video to raise awareness of the specific challenges faced by women and children impacted by albinism (women with albinism, children with albinism and mothers of children with albinism).
The right to health for persons with albinism
Animated video to raise awareness of the challenges faced by persons with albinism to access basic and necessary health care facilities, goods, and services.
Surviving the sun / Fondation Pierre Fabre
Video report on the cancer awareness, prevention and treatment work carried out in Tanzania by the NGO Standing Voice, in partnership with the Fondation Pierre Fabre.
Simon’s Journey as a person with albinism
Simon's story : under the sun of Lubumbashi, between albinism, resilience, and climate challenges (DRC)
Right to Access to Justice for persons with albinism
Animated video to raise awareness of the obstacles faced by persons with albinism to access justice after being subjected to attacks, persecution, discrimination and other human rights violations.
Persons with albinism on the move
Animated video to raise awareness of the situation of persons with albinism on the move, including migrants, refugees and those who are internally displaced.
Nnene’s Journey as a person with albinism
Nnene's story : Resilience in the face of climate change and social challenges in Nigeria
Nivushe Part 2
Story of a young girl living with albinism who faces stigmatization and criticism for the accommodations made for people with disabilities at her school.
Nivushe Part 1
A story of a young girl with albinism, passionate to explore science but encounter countless aversion from the community, and yet, her goal is to remain undefeated despite all taunts thrown at her.
Joselito’s Journey as a person with albinism
Joselito's story : A unified fight against skin cancer in Brazil
Human Rights Defenders with albinism
Animated video to raise awareness of the challenges faced by human rights defenders with albinism often face challenges.
Harmful practices targeting persons with albinism
Animated video to raise awareness of the consequences of witchcraft accusations, beliefs and practices in perpetuating violence and discrimination against people with albinism.
Guide pour les enseignants sur l’albinisme
A guide to explain the challenges faced by students with albinism, and to inform teachers about the ways to facilitate their integration.
Guide for teachers & educators of PWA
A guide to explain albinism to educational staff and outline accommodations for students with albinism.
Giraldy has albinism, he talks about it
Testimony from Giraldy, a young man with albinism in Madagascar, where he faces many forms of discrimination and violence.
Climate change and persons with albinism
Animated video to raise awareness of the impact of climate change on people living with albinism.
Born with albinism in Africa
An illustrated guide to simply explain albinism, how to protect from the sun's rays, and how to ensure the inclusion of children with albinism.
Beyond this skin – Albinism health awareness handbook
A guide to understand the health problems faced by people with albinism and best practices for improving their living conditions.
Au-delà des couleurs
Short film to raise awareness about discrimination experienced by people with albinism
Albinism, just a gene
A guide to understand how albinism is transmitted and explain the basic principles of genetics.
Albinism : Information pamphlet for teacher
A guide to explain albinism to teachers, provide information on the specific needs of students living with albinism and describe classroom accommodations.
Accès à l’éducation et à l’emploi pour les personnes atteintes d’albinisme
Animated video to raise awareness of the challenges faced by people with albinism when trying to access education and employment.
The materials available on this page have been identified by the Fondation Pierre Fabre’s teams. The authors have agreed to have them promoted on this page and made accessible to Internet users.
If you know of other awareness-raising materials on albinism, please contact us so that we can consider adding them to this toolbox.