Combating Sickle cell disease

— The world’s leading genetic disease —

Lutte contre la drépanocytose
Sickle cell disease is a serious chronic genetic affliction that is believed to affect more than 300,000 infants in sub-Saharan Africa each year. These figures motivated Fondation Pierre Fabre to join the fight against this little publicised disease in 2006.
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Sickle-cell disease, the world’s most widespread genetic disease – particularly in Africa –, affects the haemoglobin, resulting in very painful, acute attacks and potentially fatal complications, especially in children.

Approximately 50 million people worldwide are carriers of sickle cell trait and therefore likely to transmit this genetic haemoglobin disorder to their offspring. This disease, emblematic of the populations of Africa and its diaspora, limits the life expectancy of those afflicted if they do not receive proper treatment: it is thought that half the children die before the age of five.

As a “neglected” and under-diagnosed illness, sickle-cell disease is a global health concern that is nevertheless not addressed by major international aid programmes. The Fondation Pierre Fabre has been dedicated to fighting this disease for over a decade, with several clear objectives: improve screening and treatment, train healthcare professionals and encourage research, while serving as a powerful advocate for those with sickle-cell disease to help make the illness a global health priority.

The Foundation is focusing its efforts on neonatal screening for the disease, an uncommon practice in Africa, and facilitating access to proper care. Starting with the Research Centre to combat sickle cell disease (CRLD) founded in Bamako, it intends to broadly disseminate the necessary skills for this battle elsewhere on the continent and in the Caribbean region, and forge effective South-South collaborations.

Pr. Éléonore KAFANDO, Médecin biologiste et professeur d’hématologie à l’UFR des sciences de la santé de l’Université Joseph Ki Zerbo à Ouagadougou, au Burkina Faso.

The fight against sickle cell disease is gaining structure and momentum.”

Pr. Éléonore KAFANDO
Medical biologist and professor of haematology at the Health Sciences UFR (training and research unit) at Joseph Ki Zerbo University in Ouagadougou, Burkina Faso

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OUR COMMITMENT

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The fight against sickle cell disease in the Central African Republic is moving forward!

19/09/2022|

On 16th September, the Fondation Pierre Fabre launched the drep.ACCI project in Bangui, under the patronage of the First Lady of the Central African Republic, Mrs Brigitte Touadera, and in the presence of national dignitaries and technical and financial partners, including the Pasteur Institute of Bangui and the AFD - Agence Française de Développement, which is co-financing the project.

Let’s make sickle cell disease a public-health priority

03/06/2022|

Fifteen years after the Fondation Pierre Fabre's first initiatives, it has become one of most important actors in fighting sickle cell disease in Africa through Its frontline Involvement In treating patients and relieving their symptoms, coordinating prevention and research, supporting local entities, and continually raising the awareness of governments and international organisations involved in health care.