Combating Sickle cell disease
— The world’s leading genetic disease —
Sickle cell disease is a serious chronic genetic affliction that is believed to affect more than 300,000 infants in sub-Saharan Africa each year. These figures motivated Fondation Pierre Fabre to join the fight against this little publicised disease in 2006.
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Sickle-cell disease, the world’s most widespread genetic disease – particularly in Africa –, affects the haemoglobin, resulting in very painful, acute attacks and potentially fatal complications, especially in children.
Approximately 50 million people worldwide are carriers of sickle cell trait and therefore likely to transmit this genetic haemoglobin disorder to their offspring. This disease, emblematic of the populations of Africa and its diaspora, limits the life expectancy of those afflicted if they do not receive proper treatment: it is thought that half the children die before the age of five.
As a “neglected” and under-diagnosed illness, sickle-cell disease is a global health concern that is nevertheless not addressed by major international aid programmes. The Fondation Pierre Fabre has been dedicated to fighting this disease for over a decade, with several clear objectives: improve screening and treatment, train healthcare professionals and encourage research, while serving as a powerful advocate for those with sickle-cell disease to help make the illness a global health priority.
The Foundation is focusing its efforts on neonatal screening for the disease, an uncommon practice in Africa, and facilitating access to proper care. Starting with the Research Centre to combat sickle cell disease (CRLD) founded in Bamako, it intends to broadly disseminate the necessary skills for this battle elsewhere on the continent and in the Caribbean region, and forge effective South-South collaborations.
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| Prevention, diagnosis and treatment of sickle cell disease — Burkina Faso — |
Creating and developing the Research Centre to combat sickle cell disease — Mali — |
Operational study on early detection and treatment of sickle cell disease — Sénégal — |
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| Feasibility study for a sickle cell disease treatment programme — Haiti — |
Improving healthcare and social services for those with sickle cell disease — Cameroon, Congo-Brazzaville, Madagascar, DRC — |
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| Support for the sickle cell treatment unit at the Centre Hospitalier Monkole — RDC — |
Supporting a programme to fight sickle cell disease — Madagascar — |
Strengthening management of sickle cell disease in Bangui — République centrafricaine — |
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| Prevention, diagnosis and treatment of sickle cell disease — Burkina Faso — |
|
| Creating and developing the Research Centre to combat sickle cell disease — Mali — |
|
| Operational study on early detection and treatment of sickle cell disease — Sénégal — |
|
| Feasibility study for a sickle cell disease treatment programme — Haiti — |
|
| Improving healthcare and social services for those with sickle cell disease — Cameroon, Congo-Brazzaville, Madagascar, DRC — |
|
| Support for the sickle cell treatment unit at the Centre Hospitalier Monkole — RDC — |
|
| Supporting a programme to fight sickle cell disease — Madagascar — |
|
| Strengthening management of sickle cell disease in Bangui — République centrafricaine — |
Suivre notre action
The DRC introduces a national plan to combat sickle cell disease
Defined by the public authorities of the DRC with the support of the Fondation Pierre Fabre, the national strategy to fight sickle cell disease was presented to major international health partners last September in Kinshasa and validated in early November. Its objective is to have the disease made part of the essential health services package by 2022.
Fondation Pierre Fabre celebrated 20 years of commitment to healthcare in the Global South
To mark its 20th anniversary, Fondation Pierre Fabre organised on Thursday 12 September 2019 a day of discussions and celebration attended by Jean-Yves Le Drian, Europe and Foreign Affairs Minister, and Dr Denis Mukwege, winner of the 2018 Nobel Peace Prize.
Podcast 6 : ” 2018, delivering eHealth solutions “
In this final podcast retracing the history of the Fondation, we’ll discover how eHealth has become an intervention pathway in its own right. We take an in-depth look at eHealth and the initiatives run by the Fondation to promote equal access to healthcare and optimise national public health policies.