Support for the sickle cell treatment unit at the Centre Hospitalier Monkole
— DRC —
Though Fondation Pierre Fabre has been involved in the fight against sickle cell disease in Mali since 2006, it has continued to be committed to the cause in other sub-Saharan countries. For the Foundation, helping to create screening and treatment units means supporting the independence of these countries in coping with the disease and developing a South-South skills network.
The Democratic Republic of the Congo is of particular interest: 50,000 newborns are affected by the severe form of the disease every year, and 6% of children hospitalised in the paediatric unit have sickle cell disease. The country’s health authorities have been taking action: for example, in 2006, they established a national action programme against this disease, which was implemented with precious help from Professor Léon Tshilolo, Director of Centre hospitalier Monkole (Monkole hospital) in Kinshasa.
In 2011, the Pierre Fabre Foundation decided to join forces with this respected specialist. It pledged to provide two years of support for the sickle cell treatment unit at the Monkole hospital facility. This support entailed funding the materials needed for patient screening and treatment, as well as training healthcare personnel, done in part through the CEFA (healthcare training and support centre) associated with the hospital. It also subsidised education about the disease for patients, their families, health workers and the general public. Lastly, in 2012, the Foundation helped build a paediatric unit dedicated to sickle cell disease housed in a new building of the hospital complex.
Now completed, the Foundation’s work has nevertheless continued through a multi-country programme involving the Democratic Republic of Congo and the Monkole centre, as well as Cameroon, Congo-Brazzaville and Madagascar. This broader, more ambitious project will combine and catalyse the expertise and best practices of these entities to improve management of the disease in each country, and serve as an international advocacy platform in the fight against sickle cell disease.
Combating Sickle cell disease
2012 – 2013
Type of involvement
- Equipment funding
- Training funding
- Funding of awareness campaigns
- Funding construction of the paediatric wing in the new building
The help we’ve received from Fondation Pierre Fabre has been invaluable to us. Today, however, we are still seeing a major shortfall in material and human resources, in contrast with the disease’s extreme prevalence and its negative social impact on families. Early screening, as recommended by WHO, is performed in the city of Kinshasa. I’m delighted that our work will continue as part of the multi-country programme.”
Pr Léon Tshilolo
Medical Director/Senior Coordinator Monkole Hospital Centre Health Training and Support Centre (CEFA), Kinshasa
samples analysed between March 2011 and December 2012 in the neonatal and infant screening campaigns, including 10,786 with the support of Fondation Pierre Fabre
training sessions provided in 2011 and 2012 for 36 physicians, 151 nurses and 43 healthcare workers
associations fighting sickle cell formed between 2011 and 2012 on the theme “Know and raise awareness about sickle cell disease”
of surgeries performed on sickle cell patients between January 2011 and March 2012 funded by Fondation Pierre Fabre
heart monitors funded by the Foundation, along with 18 oxygen concentrators, 6 remote-controlled hospital beds, 5 remote-controlled blood-sampling or dialysis chairs, etc.
To go further
In 2014, Cameroon, Madagascar and the two Congo joined forces in a vast transnational program to effectively fight against sickle cell disease. The Foundation supports the project overseen by the IECD and financed by the AFD.
Improving healthcare and social services for those with sickle cell disease
With leadership from Professor Dapa Diallo and strong support from the Foundation, the first Research Centre to combat Sickle Cell Disease opened in Bamako, Mali, in 2005.
Creating and developing the Research Centre to combat sickle cell disease
Follow our actions
To mark its 20th anniversary, Fondation Pierre Fabre organised on Thursday 12 September 2019 a day of discussions and celebration attended by Jean-Yves Le Drian, Europe and Foreign Affairs Minister, and Dr Denis Mukwege, winner of the 2018 Nobel Peace Prize.