{"id":9561,"date":"2020-12-02T09:57:20","date_gmt":"2020-12-02T08:57:20","guid":{"rendered":"https:\/\/www.fondationpierrefabre.org\/?p=9561"},"modified":"2025-02-12T19:37:21","modified_gmt":"2025-02-12T18:37:21","slug":"the-drc-introduces-a-national-plan-to-combat-sickle-cell-disease","status":"publish","type":"post","link":"https:\/\/www.fondationpierrefabre.org\/en\/current-initiatives\/the-drc-introduces-a-national-plan-to-combat-sickle-cell-disease\/","title":{"rendered":"The DRC introduces a national plan to combat sickle cell disease"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-margin-bottom:30px;--awb-background-color:#f2f2f2;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-1\"><h1 style=\"text-align: center;\">The DRC introduces a national plan to combat sickle cell disease<\/h1>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-2\"><p><strong>25\/11\/2020<\/strong><\/p>\n<p><strong>The national strategic plan to combat sickle cell disease, established by DRC public authorities with support from the Fondation Pierre Fabre, was presented to major international health partners in Kinshasa last September and then officially approved in early November. Its objective is to have the disease made part of the essential health services package by 2022.<\/strong><\/p>\n<p>The Democratic Republic of Congo Minister of Health invited the health sector\u2019s institutional, technical and financial partners to a presentation of the strategic plan to combat sickle cell disease on 8 September. The partners, most importantly the WHO, UNICEF and the Global Fund, ultimately intend to take the disease into account in the programmes they fund in the DRC.<\/p>\n<p>On 5 November 2020, the Ministry of Health\u2019s Services Commission approved the DRC\u2019s national strategy to combat sickle cell disease, a plan that is aligned with the National Health Development Plan, officially marking the integration of sickle cell disease treatment into the country\u2019s health system, which is the second largest in Africa, covering an area over two million square kilometres, with 516 health zones.<\/p>\n<p><strong>DRC: the African country second-most affected by sickle cell disease<br \/>\n<\/strong>The DRC, with prevalence in new-borns estimated at 2%, is the African country second-most affected by the disease, after Nigeria. It is estimated that 50,000 children are born each year with sickle cell disease and that half of them die before the age of five, when early and appropriate treatment means patients can control symptoms and avoid severe seizures.<\/p>\n<p>The DRC\u2019s commitment is meant to dovetail and focus the efforts of all entities, stakeholders and financial partners to help improve the health of the sickle-cell population. This is an important step toward fully recognising the burden of this disease and the need to build a generalised approach to prevention and treatment.<\/p>\n<p><strong>The Fondation Pierre Fabre\u2019s support for the Ministry of Health<br \/>\n<\/strong>The Fondation Pierre Fabre, working in the DRC since 2014 as part of a <a href=\"https:\/\/www.fondationpierrefabre.org\/en\/our-programmes\/combatting-sickle-cell-disease\/improving-healthcare-social-services-sickle-cell-disease\/\">partnership with the Institut Europ\u00e9en de Coop\u00e9ration et de D\u00e9veloppement (IECD),<\/a> was asked by the public authorities to provide its expertise and contribute to the process of aligning the national sickle cell disease plan with the National Health Development Plan.<\/p>\n<p>This support takes two forms:<\/p>\n<ul>\n<li>Supporting local partners in formalising a national strategy for having sickle cell disease incorporated into the country\u2019s major health programmes;<\/li>\n<li>Establishing a targeted action plan for diagnosis, caregiver training, raising public awareness and collecting epidemiological data.<\/li>\n<\/ul>\n<p><strong>A pilot project in three DRC health zones<br \/>\n<\/strong>Along with this support, the Fondation Pierre Fabre has requested funding for a pilot operational phase from the Agence Fran\u00e7aise de D\u00e9veloppement (AFD). The project will be implemented in three DRC health zones, supporting local centres in treating sickle cell patients.<\/p>\n<p>This three-year project focuses on supplying equipment, training staff, increasing prevention among young people and raising community awareness. The results of this pilot phase, scheduled to start in 2021, will formalise impact results, furnish the national project with additional data and facilitate scaling up across the country.<\/p>\n<\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:8px;margin-bottom:7px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-equal-height-columns\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-background-color:#22789c;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_4 1_4 fusion-one-fourth fusion-column-first\" style=\"--awb-bg-size:cover;width:25%;width:calc(25% - ( ( 4% ) * 0.25 ) );margin-right: 4%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-column-wrapper-legacy\"><div class=\"fusion-column-content-centered\"><div class=\"fusion-column-content\"><div class=\"fusion-image-element in-legacy-container\" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><img decoding=\"async\" width=\"378\" height=\"452\" title=\"IMG_20200828_103928_968\" src=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2020\/11\/IMG_20200828_103928_968-e1606899342750.jpg\" data-orig-src=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2020\/11\/IMG_20200828_103928_968-e1606899342750.jpg\" alt class=\"lazyload img-responsive wp-image-9479\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27378%27%20height%3D%27452%27%20viewBox%3D%270%200%20378%20452%27%3E%3Crect%20width%3D%27378%27%20height%3D%27452%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2020\/11\/IMG_20200828_103928_968-e1606899342750-200x239.jpg 200w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2020\/11\/IMG_20200828_103928_968-e1606899342750.jpg 378w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 800px) 100vw, 600px\" \/><\/span><\/div><\/div><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_3_4 3_4 fusion-three-fourth fusion-column-last\" style=\"--awb-padding-top:40px;--awb-bg-size:cover;width:75%;width:calc(75% - ( ( 4% ) * 0.75 ) );\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-3\"><p><span style=\"color: #000000;\"><img decoding=\"async\" class=\"lazyload alignnone wp-image-1802\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%2775%27%20height%3D%2763%27%20viewBox%3D%270%200%2075%2063%27%3E%3Crect%20width%3D%2775%27%20height%3D%2763%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2018\/07\/Sans-titre-1-1.png\" alt=\"\" width=\"75\" height=\"63\" \/><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><strong>Three questions to L\u00e9opold Nzambimpungu, Deputy National Director of the DRC Ministry of Health\u2019s national programme to combat sickle cell disease<\/strong><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><strong>How did the strategic plan to combat sickle cell disease come about?<\/strong><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><em>\u201cIt arose out of the strong political will to integrate treatment of sickle cell disease into our national health development plan and our healthcare system, meaning community health centres, referral hospitals and research programmes. Sickle cell disease is a neglected disease, yet it\u2019s the world\u2019s leading genetic disease and, sadly, we are one of the most affected countries.\u201d<\/em><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><strong>What will change for sickle cell patients?<\/strong><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><em>\u201cThe goal is to integrate screening and treatment for sickle cell disease into the essential health services package, just as HIV\/AIDS, malaria and tuberculosis are today. With consistent early detection, we will facilitate access to treatment and improve the quality of services offered nationwide, with a clear priority: children, whose mortality rate is particularly high in remote rural areas.\u201d<\/em><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><strong>How is the Fondation Pierre Fabre supporting this work?<\/strong><\/span><\/p>\n<p><span style=\"color: #ffffff;\"><em>\u201cThe Fondation Pierre Fabre helped us with the approval of the normative documents and we asked them to also establish a roadmap and formalise advocacy to help bring in other financial partners. Furthermore, we need support in our communications and awareness-raising, because sickle cell disease is a poorly understood, stigmatising disease that is burdened by many archaic beliefs. There\u2019s a great deal of educational work to do in communities to change peoples\u2019 mindsets.\u201d<\/em><\/span><\/p>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Defined by the public authorities of the DRC with the support of the Fondation Pierre Fabre, the national strategy to fight sickle cell disease was presented to major international health partners last September in Kinshasa and validated in early November. Its objective is to have the disease made part of the essential health services package by 2022.<\/p>\n","protected":false},"author":13,"featured_media":9482,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[65,95,387],"tags":[185],"class_list":["post-9561","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-combating-sickle-cell-disease-areas","category-current-initiatives","category-drc","tag-drc"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The DRC introduces a national plan to combat sickle cell disease - Fondation Pierre Fabre<\/title>\n<meta name=\"description\" content=\"Defined by the public authorities with the support of the Fondation Pierre Fabre, its objective is to have the disease made part of the essential health services 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