{"id":18746,"date":"2025-08-27T23:47:19","date_gmt":"2025-08-27T21:47:19","guid":{"rendered":"https:\/\/www.fondationpierrefabre.org\/current-initiatives\/conception-de-nouveaux-supports-de-sensibilisation-et-dinformation-sur-lalbinisme\/"},"modified":"2025-12-18T11:23:45","modified_gmt":"2025-12-18T10:23:45","slug":"design-of-new-awareness-raising-and-information-materials-on-albinism","status":"publish","type":"post","link":"https:\/\/www.fondationpierrefabre.org\/en\/current-initiatives\/design-of-new-awareness-raising-and-information-materials-on-albinism\/","title":{"rendered":"Design of new awareness-raising and information materials on albinism"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-margin-bottom:30px;--awb-background-color:#f2f2f2;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-1\"><h1 style=\"text-align: center;\">Design of new awareness-raising and information materials on albinism<\/h1>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-image-carousel fusion-image-carousel-auto fusion-image-carousel-1 fusion-carousel-border\"><div class=\"awb-carousel awb-swiper awb-swiper-carousel awb-carousel--carousel awb-swiper-dots-position-bottom\" data-layout=\"carousel\" data-autoplay=\"no\" data-autoplayspeed=\"2500\" data-autoplaypause=\"no\" data-loop=\"yes\" data-columns=\"1\" data-columnsmedium=\"1\" data-columnssmall=\"1\" data-itemmargin=\"13\" data-itemwidth=\"180\" data-touchscroll=\"no\" data-freemode=\"no\" data-imagesize=\"auto\" data-scrollitems=\"0\" data-centeredslides=\"no\" data-rotationangle=\"50\" data-depth=\"100\" data-speed=\"500\" data-shadow=\"no\" data-pagination=\"bullets\" style=\"--awb-columns:1;--awb-border-width:1px;--awb-border-color:#e9eaee;--awb-dots-align:center;\"><div class=\"swiper-wrapper awb-image-carousel-wrapper fusion-flex-align-items-center\"><div class=\"swiper-slide\"><div class=\"fusion-carousel-item-wrapper\"><div class=\"fusion-image-wrapper hover-type-none\"><img decoding=\"async\" width=\"840\" height=\"560\" src=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761.jpg\" class=\"attachment-full size-full lazyload\" alt=\"\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27840%27%20height%3D%27560%27%20viewBox%3D%270%200%20840%20560%27%3E%3Crect%20width%3D%27840%27%20height%3D%27560%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761.jpg\" data-srcset=\"https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-200x133.jpg 200w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-300x200.jpg 300w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-400x267.jpg 400w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-600x400.jpg 600w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-768x512.jpg 768w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761-800x533.jpg 800w, https:\/\/www.fondationpierrefabre.org\/wp-content\/uploads\/sites\/2\/2025\/08\/IMG_9761.jpg 840w\" data-sizes=\"auto\" \/><\/div><\/div><\/div><\/div><div class=\"awb-swiper-button awb-swiper-button-prev\"><i class=\"awb-icon-angle-left\" aria-hidden=\"true\"><\/i><\/div><div class=\"awb-swiper-button awb-swiper-button-next\"><i class=\"awb-icon-angle-right\" aria-hidden=\"true\"><\/i><\/div><\/div><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:8px;margin-bottom:7px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-text fusion-text-2\"><p><strong>27\/08\/2025<\/strong><\/p>\n<p><strong>As part of the APPASAAS project, the Fondation Pierre Fabre is contributing to the dissemination of appropriate educational information to improve the protection, inclusion, and care of persons with albinism in sub-Saharan Africa. There is still a need to raise awareness of this genetic condition to promote best protection practices, improve access to healthcare and rights, and dispel myths and misconceptions.<\/strong><\/p>\n<p>In collaboration with associations of persons with albinism and stakeholders defending their rights, the project team organized a series of brainstorming workshops, writing sessions and consultation meetings, resulting in the creation of two new awareness-raising materials on albinism:<\/p>\n<ul>\n<li>An awareness-raising <a href=\"https:\/\/www.fondationpierrefabre.org\/en\/programmes\/awareness-poster\/\" target=\"_blank\" rel=\"noopener\">poster<\/a> for schools and health centers<\/li>\n<li>An information <a href=\"https:\/\/www.fondationpierrefabre.org\/en\/programmes\/albinisme-comprendre-pour-mieux-vivre-ensemble\/\" target=\"_blank\" rel=\"noopener\">brochure<\/a> for healthcare professionals and families<\/li>\n<\/ul>\n<p>These tools, tailored to the needs and practices of local organizations, provide simple and scientifically verified information. Currently available in French and English, they will soon be translated into six local African languages to reach a wider audience.<\/p>\n<p>You can consult and download these materials from the online albinism awareness toolbox on the Fondation Pierre Fabre website: <a href=\"https:\/\/www.fondationpierrefabre.org\/en\/albinism-awareness-toolbox\/\" target=\"_blank\" rel=\"noopener\">Albinism Awareness Toolbox &#8211; Fondation Pierre Fabre<\/a><\/p>\n<p><a href=\"https:\/\/www.fondationpierrefabre.org\/en\/programmes\/improving-protection-prevention-and-access-to-health-care-for-people-with-albinism-in-sub-saharan-africa\/\" target=\"_blank\" rel=\"noopener\">To find out more about APPASAAS, visit the project presentation page<\/a><\/p>\n<p><strong><em>Albinism, let\u2019s act for health and human rights<\/em><\/strong><\/p>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"<p>As part of the APPASAAS project, the Fondation Pierre Fabre is contributing to the dissemination of appropriate educational information to improve the protection, inclusion, and care of persons with albinism in sub-Saharan Africa. There is still a need to raise awareness of this genetic condition to promote best protection practices, improve access to healthcare and rights, and dispel myths and misconceptions.<\/p>\n","protected":false},"author":2,"featured_media":18743,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[95,66,77],"tags":[371],"class_list":["post-18746","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-current-initiatives","category-dermatology-areas","category-multicountries","tag-multi-countries"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Design of new awareness-raising and information materials on albinism - Fondation Pierre Fabre<\/title>\n<meta name=\"description\" content=\"As part of the APPASAAS project, the Fondation Pierre Fabre is contributing to the dissemination of appropriate educational information to improve the protection, inclusion, and care of persons with albinism in sub-Saharan Africa. 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