Approximately 50 million people worldwide are carriers of sickle cell trait and therefore likely to transmit this genetic haemoglobin disorder to their offspring. This disease, emblematic of the populations of Africa and its diaspora, limits the life expectancy of those afflicted if they do not receive proper treatment: it is thought that half the children die before the age of five.
On the African continent, where some countries already have up to a 2% affliction rate among newborns, sickle cell disease may well gain momentum. A population boom is expected there, seeing a billion more people by 2050. Beginning immediate investment in therapeutic research would therefore seem an urgent priority. In addition to treatments to relieve pain and combat complications, a basic course of treatment must be developed to curtail transmission of the disease.
We are still far from reaching this objective. In the meantime, the Foundation is focusing its efforts on neonatal screening for the disease, an uncommon practice in Africa, and facilitating access to proper care. Starting with the Research Centre to combat sickle cell disease (CRLD) founded in Bamako, it intends to broadly disseminate the necessary skills for this battle elsewhere on the continent and in the Caribbean region, and forge effective South-South collaborations.
Improving healthcare and social services for those with sickle cell disease — Cameroon, Congo-Brazzaville, Madagascar, DRC —
Feasibility study for a sickle cell disease treatment programme — Haiti —
Operational study on early detection and treatment of sickle cell disease — Senegal —
Creating and developing the Research Centre to combat sickle cell disease — Mali —
Prevention, diagnosis and treatment of sickle cell disease — Burkina Faso —
Supporting a programme to fight sickle cell disease — Madagascar —
Strengthening management of sickle cell disease in Bangui — The Central African Republic —
Support for the sickle cell treatment unit at the Centre Hospitalier Monkole — DRC —
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Committed to fighting sickle cell disease for over a decade
At the 3rd Global Congress on Sickle Cell Disease, the Foundation looked back on its decade-long commitment to the fight against sickle cell anaemia, the world’s leading genetic disease.
Every three years, this congress brings together researchers and clinicians to report on progress made in combatting this disease.
Haiti – The Foundation’s response to the health crisis
Since Hurricane Matthew tore across the country on 4 October 2016, Haiti has been tackling another major humanitarian crisis.
In light of an increasing number of cholera cases, the Fondation Pierre Fabre has chosen to join forces with the NGOs ACTED and Collectif Haïti Occitanie.
The Global South eHealth Observatory - November 2016 news
The Fondation Pierre Fabre is in Abidjan from 29 November to 1 December for the third annual Africa Web Festival.
This festival, begun in 2014, is now the biggest event working to promote and expand ICTs in French-speaking Africa.